Cystic Fibrosis not stopping 5-year-old Union City girl
Posted: Thursday, May 5, 2011 9:55 pm
Ada Reed Rogers, 5-year-old daughter of Michael and Laney Rogers of Union City, is seldom still. If she is, you can be sure she’s anticipating the next round of fun or pondering questions sure to stump her parents.
Ada Reed was diagnosed with Cystic Fibrosis when she was 4 months old. Since that time, she has been under the watchful care of doctors at Vanderbilt Medical Center’s Cystic Fibrosis Center in Nashville.
She faces the dramatic health uncertainties known only too well to CF patients in her future, but there is virtually no evidence of that in her non-stop determination to taste life to its fullest.
CF is an inherited chronic disease. About 30,000 children and adults in this country have been diagnosed with the condition that affects the lungs and digestive system. A defective gene, which must be inherited from both parents, produces a thick, sticky mucus in the body that clogs the lungs and leads to life-threatening lung infections and that obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with CF lived to attend elementary school, according to the Cystic Fibrosis Foundation website. Today, advances in research and medical treatment have enhanced and extended life for children and adults with CF. Many people diagnosed with the disease live into their 30s or 40s or beyond. Research and treatment that has so profoundly affected the lives of children diagnosed with CF and their families is supported by fund raising efforts channeled through the foundation. To call attention to its important work, the foundation has designated May “CF Awareness Month.”
It is expected that 1,000 new cases of CF will be diagnosed this year. The predicted median age for survival is now in the mid-30s. Promising new treatment supported by the foundation could dramatically affect both numbers.
“Adding tomorrows every day” expresses both the mission and the results of the CF Foundation’s effort to extend the length and quality of life for children like Ada Reed and young adults who have dealt with the condition all their lives.
Locally, children from the FaithQuest Sunday School Class at Union City First United Methodist Church will be engaging in the third annual “Pedaling for a Cure” fund raiser Saturday from 9:30-11:30 a.m. at the church, which is located at 420 East Main St. A variety of fun activities are planned and children are encouraged to bring their bikes and trikes to the church parking lot and enjoy riding.
Other “fun”raiser activities will include a T-shirt sale, games, face painting, crafts, a puppet show, a talent show and a bake sale. Armbands to participate in the fun will be $5. Individual event tickets will be a quarter each. Donations for CF research will also be accepted, with all funds raised going to the foundation’s efforts, according to Kim Taylor, Ada Reed’s preschool teacher and also the children’s ministry director at the church.
“Everyone is invited to join us to raise money for a great cause,” Mrs. Taylor says.